About this site
Not With My NHS Data is an independent, non-commercial project run by members of the UK public who are concerned about the way identifiable patient records are being shared with private contractors through the NHS England Federated Data Platform (FDP) and the National Data Integration Tool (NDIT).
The standard National Data Opt-Out covers research and planning uses of NHS data. NHS England classifies the FDP/NDIT as direct care, so the existing opt-out does not apply. There is currently no specific way for an individual patient to opt out of the FDP. This site exists to help people exercise the rights they do have — Article 21 UK GDPR, the right to complain to the ICO, and the right to be heard by their MP.
I've spent my career working with NHS data. Not in a government building — I run an independent company that helps healthcare organisations use their data better, more safely, and more responsibly. I understand what good data governance looks like. I understand what pseudonymisation actually means, where it works, and crucially, where it doesn't. I understand why the NDIT layer matters in ways that a press release won't tell you.
When I read the Financial Times story on the morning of 11 May 2026, I wasn't surprised. I was angry. Not because Palantir is a competitor — they're not, we operate in completely different spaces. Not because I have a contract to win or a political point to score. But because I know exactly what it means when identifiable patient data — real names, real NHS numbers, real diagnoses — sits in a system that private contractors can access without meaningful oversight, without a patient opt-out, and without the public even being told it's happening.
Medical confidentiality isn't a technicality. It's the reason people tell their doctor things they don't tell anyone else. The moment patients stop trusting that their records are private, they stop being honest with clinicians. That costs lives. It's that simple.
I started this campaign because I couldn't find a good reason not to. I have the knowledge to explain what's actually happening. I have the skills to build something that makes it easy for people to push back. And I have enough respect for the NHS — the real NHS, the one built on patient trust — to think it deserves better than this.
No axe to grind. No Palantir contract to win. Just someone who knows how this works, and knows it's wrong.
Your name, address and postcode are used in your browser to draft the letters and look up your MP via the public UK Parliament Members API. We do not store, log, share or sell any of those details. The only thing saved to our database is an anonymous row marking that a letter was generated for a given constituency, so we can show a public counter.
The letters are templates. You are the sender. You decide what to edit, what to send, and to whom. We do not contact anyone on your behalf.
We point readers to the work of medConfidential, Foxglove, and the Open Rights Group. They have been doing the serious legal and policy work on this for years. If you can support them, please do.